WHO WE ARE

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Cure Cystic Fibrosis Miami Foundation's mission is to improve the lives of those affected by Cystic Fibrosis and to support the Cystic Fibrosis Foundation.

We are a group of passionate, dedicated volunteers, community and business leaders dedicated to curing cystic fibrosis.

 

In 2010, 15 day old Delaney Binker was diagnosed with Cystic Fibrosis.  Friends and family immediately came together and began raising money to support the research being funded by the Cystic Fibrosis Foundation.  This group became Cure Cystic Fibrosis Miami. 

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We will not stop until a cure is found…until the day when Delaney and all those with cystic fibrosis can say “I used to have cystic fibrosis.”

 

Cure Cystic Fibrosis Miami Foundation is an IRS designated non-profit tax-exempt organization under Section 501 (c) (3) of the Internal Revenue Code. Accordingly, the Foundation is not required to pay income taxes.  Donors may deduct contributions to Cure Cystic Fibrosis Miami Foundation, only to the extent that their contributions are gifts, with no consideration given.

Cure Cystic Fibrosis Miami was created to promote awareness of cystic fibrosis thru education, to advocate for the needs of those with cystic fibrosis and to assist those with cystic fibrosis by adding quality of life for them and their families.   

 

WHAT IS CYSTIC FIBROSIS?

Cystic fibrosis is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time.

In people with CF, a genetic defect produces a thick sticky mucus in various organs.

In the lungs, the mucus clogs the airways and traps germs, like bacteria, leading to infectionsinflammation, respiratory failure, and other complications.

 

In the pancreas, the buildup of mucus prevents the release of digestive enzymes that help the body absorb food and key nutrients, resulting in malnutrition and poor growth.

 

In the liver, the thick mucus can block the bile duct, causing liver disease. 

 

Currently there is no cure.

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